<?xml version="1.0" encoding="UTF-8"?><rss version="2.0"
	xmlns:content="http://purl.org/rss/1.0/modules/content/"
	xmlns:dc="http://purl.org/dc/elements/1.1/"
	xmlns:atom="http://www.w3.org/2005/Atom"
	>
<channel>
	<title>Comments on: The Farse of Ovarian Cancer</title>
	<atom:link href="http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/feed/" rel="self" type="application/rss+xml" />
	<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/</link>
	<description>It Is What It Is</description>
	<pubDate>Mon, 06 Oct 2008 21:17:06 +0000</pubDate>
	<generator>http://wordpress.org/?v=2.6.2</generator>
		<item>
		<title>By: Lisa</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1262</link>
		<dc:creator>Lisa</dc:creator>
		<pubDate>Tue, 22 Apr 2008 03:58:38 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1262</guid>
		<description>&lt;strong&gt;Susan&lt;/strong&gt;, We are planning on having the times of our lives, God willing.  I'm kind of ignoring cancer right now...if one can do that.  OK I'm not ignoring it but taking a mini-vacation until I have a CT scan on Friday.

I'm over the miscommunication and the fuck ups.  Totally over it.  I spent a year being angry and a year blogging about it.  Those posts have been deleted because I don't ever want to talk about how angry and how self destructive I was.

We've already tried the malpractice route and because it's so complicated we've been turned down twice.  No one wants to touch the case.

So my choices are to let it swallow me up whole or keep on marching with my chin up high because the minute I give in my life is done.  Trust me, I almost died in October.</description>
		<content:encoded><![CDATA[<p><strong>Susan</strong>, We are planning on having the times of our lives, God willing.  I&#8217;m kind of ignoring <acronym title="should be a curse word">cancer</acronym> right now&#8230;if one can do that.  OK I&#8217;m not ignoring it but taking a mini-vacation until I have a CT scan on Friday.</p>
<p>I&#8217;m over the miscommunication and the fuck ups.  Totally over it.  I spent a year being angry and a year blogging about it.  Those posts have been deleted because I don&#8217;t ever want to talk about how angry and how self destructive I was.</p>
<p>We&#8217;ve already tried the malpractice route and because it&#8217;s so complicated we&#8217;ve been turned down twice.  No one wants to touch the case.</p>
<p><acronym title="Most abused word on this site.  Please find me a 12-Step program.">So</acronym> my choices are to let it swallow me up whole or keep on marching with my chin up high because the minute I give in my life is done.  Trust me, I almost died in October.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Susan Reynolds</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1237</link>
		<dc:creator>Susan Reynolds</dc:creator>
		<pubDate>Mon, 21 Apr 2008 13:42:00 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1237</guid>
		<description>argh this makes me so mad I could spit. I cant even talk right now because I'm so mad - ok  you know what I mean - write - I cant write or say the words I'm thinking. 

So far my own cancer experience seems like it's the biggest case of _overwhelm_ I've ever dealt with. Your story doesn't make mine seem even one bit better. Crap. This cancer docs not communicating nor interacting with our primary care docs is getting old old old and the number of times it happened is getting me down. 

If you don't have a good time at Disney I'm going to  personally come and strangle you. . . which would be hard on my best days but damn it, you deserve to enjoy, ok? And like right now! Do it for me and the other cancer patients are too sick to go. We are so excited for you!

As for the treatment money - lets talk about what the situation is when you get back. 

If the frozen pea fund http://frozenpeafund.com can't help someone get a social media fundraiser off the ground I'll be really surprised. 

Right now we don't give funds to individuals but we're a.) developing an emergency grant / loan fund and b.) trying to help others use the net to leverage social connections and people who want to do good - to help us in general and to help individuals like you. And we've been pretty decent at that so far :)

Look at all these people who we could harness to help BEYOND helping you guys have a great time!

PS - asking a part of your team to find a good malpractice lawyer might be a really empowering step to take too.</description>
		<content:encoded><![CDATA[<p>argh this makes me so mad I could spit. I cant even talk right now because I&#8217;m so mad - ok  you know what I mean - write - I cant write or say the words I&#8217;m thinking. </p>
<p><acronym title="Most abused word on this site.  Please find me a 12-Step program.">So</acronym> far my own <acronym title="should be a curse word">cancer</acronym> experience seems like it&#8217;s the biggest case of _overwhelm_ I&#8217;ve ever dealt with. Your story doesn&#8217;t make mine seem even one bit better. Crap. This <acronym title="should be a curse word">cancer</acronym> docs not communicating nor interacting with our primary care docs is getting old old old and the number of times it happened is getting me down. </p>
<p>If you don&#8217;t have a good time at Disney I&#8217;m going to  personally come and strangle you. . . which would be hard on my best days but damn it, you deserve to enjoy, ok? And like right now! Do it for me and the other <acronym title="should be a curse word">cancer</acronym> patients are too sick to go. We are so excited for you!</p>
<p>As for the treatment money - lets talk about what the situation is when you get back. </p>
<p>If the frozen pea fund <a href="http://frozenpeafund.com" rel="nofollow">http://frozenpeafund.com</a> can&#8217;t help someone get a social media fundraiser off the ground I&#8217;ll be really surprised. </p>
<p>Right now we don&#8217;t give funds to individuals but we&#8217;re a.) developing an emergency grant / loan fund and b.) trying to help others use the net to leverage social connections and people who want to do good - to help us in general and to help individuals like you. And we&#8217;ve been pretty decent at that so far <img src='http://clusterfook.com/wp-includes/images/smilies/icon_smile.gif' alt=':)' class='wp-smiley' /> </p>
<p>Look at all these people who we could harness to help BEYOND helping you guys have a great time!</p>
<p>PS - asking a part of your team to find a good malpractice lawyer might be a really empowering step to take too.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Lisa</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1171</link>
		<dc:creator>Lisa</dc:creator>
		<pubDate>Sat, 19 Apr 2008 02:39:38 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1171</guid>
		<description>&lt;strong&gt;Miss Britt&lt;/strong&gt;, It's like a mixed bag because there is no way of knowing what kind of cancer I have right now.  In some respect I feel like ignorance is bliss...for the time being.  In other respects it's terrifying because where and what the hell are we dealing with.

I think I'll just live in a fantasy bubble until I come back from Disney because after I come back my living hell begins.</description>
		<content:encoded><![CDATA[<p><strong>Miss Britt</strong>, It&#8217;s like a mixed bag because there is no way of knowing what kind of <acronym title="should be a curse word">cancer</acronym> I have right now.  In some respect I feel like ignorance is bliss&#8230;for the time being.  In other respects it&#8217;s terrifying because where and what the hell are we dealing with.</p>
<p>I think I&#8217;ll just live in a fantasy bubble until I come back from Disney because after I come back my living hell begins.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Miss Britt</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1156</link>
		<dc:creator>Miss Britt</dc:creator>
		<pubDate>Fri, 18 Apr 2008 13:13:00 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1156</guid>
		<description>Hmm... you know... I'm thinking.

Is it at ALL possible that this news is, kind of, sort of, good news?

I mean, not that cancer is good news.

But is it possible that there is a better chance of beating it now?

Or am I being naive?</description>
		<content:encoded><![CDATA[<p>Hmm&#8230; you know&#8230; I&#8217;m thinking.</p>
<p>Is it at ALL possible that this news is, kind of, sort of, good news?</p>
<p>I mean, not that <acronym title="should be a curse word">cancer</acronym> is good news.</p>
<p>But is it possible that there is a better chance of beating it now?</p>
<p>Or am I being naive?</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Lisa</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1152</link>
		<dc:creator>Lisa</dc:creator>
		<pubDate>Fri, 18 Apr 2008 10:48:37 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1152</guid>
		<description>&lt;strong&gt;Karen&lt;/strong&gt;, Aww that is so sweet of you.  I think I'm in good hands now.  Watch my mailbox??  What's coming???

&lt;strong&gt;Nina&lt;/strong&gt;, Trip is booked.  Sloane Kettering is an option we are still considering and we may consider taking you up on a place to crash!

&lt;strong&gt;NYCWD&lt;/strong&gt;, I think he is more competent.  I can't wait for Disney.  My bags are partially packed.

&lt;strong&gt;Jen&lt;/strong&gt;, Thank you very much for the link!!!

&lt;strong&gt;yoshi&lt;/strong&gt;,  LOL @ GH3...I hate it when a kid kicks my ass.

&lt;strong&gt;J.&lt;/strong&gt;, I plan on having a great time!

&lt;strong&gt;Tug&lt;/strong&gt;, I'm so glad she loved the bracelet!!!  I've got my peace again.

&lt;strong&gt;Dimplz&lt;/strong&gt;, That is so kind of you for putting my name on a petition.

I'm sorry to hear about your lupus.  I hope you are doing O.K.

&lt;strong&gt;Colin&lt;/strong&gt;, It may sound crazy but it really makes a lot of sense because it is in so many organs it's hard to know where it originated from.

&lt;strong&gt;annie&lt;/strong&gt;, I have last years bills on a payment plan so this one will get added to the bunch.

&lt;strong&gt;geek&lt;/strong&gt;, I'm in the same boat with a house falling apart.  I have appliances ready to go at any minute and I refuse to stress out over any of it anymore.

&lt;strong&gt;that girl&lt;/strong&gt;, I tried to pursue a malpractice suit but was told I have no grounds.

It was too complicated for the lawyers to handle basically.

&lt;strong&gt;Chatty&lt;/strong&gt;, That's a very good and valid point.  They actually DEMAND all of their money NOW.

&lt;strong&gt;Mary&lt;/strong&gt;, I can't WAIT until Disney World.  I talked about it nonstop at work yesterday.

&lt;strong&gt;Cindy&lt;/strong&gt;, I'm so glad you're here!  Thanks for keeping us in your thoughts and adding me to your links.

&lt;strong&gt;Karl&lt;/strong&gt;, We tried the lawsuit...it was a no-go.  

I cannot wait to go to Disney.  My suitcase is halfway packed.  I'm getting the girls swimsuits this weekend and packing their bags.

I CANNOT WAIT!!!!!!!</description>
		<content:encoded><![CDATA[<p><strong>Karen</strong>, Aww that is so sweet of you.  I think I&#8217;m in good hands now.  Watch my mailbox??  What&#8217;s coming???</p>
<p><strong>Nina</strong>, Trip is booked.  Sloane Kettering is an option we are still considering and we may consider taking you up on a place to crash!</p>
<p><strong>NYCWD</strong>, I think he is more competent.  I can&#8217;t wait for Disney.  My bags are partially packed.</p>
<p><strong>Jen</strong>, Thank you very much for the link!!!</p>
<p><strong>yoshi</strong>,  <acronym title="Laughing out loud">LOL</acronym> @ GH3&#8230;I hate it when a kid kicks my ass.</p>
<p><strong>J.</strong>, I plan on having a great time!</p>
<p><strong>Tug</strong>, I&#8217;m so glad she loved the bracelet!!!  I&#8217;ve got my peace again.</p>
<p><strong>Dimplz</strong>, That is so kind of you for putting my name on a petition.</p>
<p>I&#8217;m sorry to hear about your lupus.  I hope you are doing O.K.</p>
<p><strong>Colin</strong>, It may sound crazy but it really makes a lot of sense because it is in so many organs it&#8217;s hard to know where it originated from.</p>
<p><strong>annie</strong>, I have last years bills on a payment plan so this one will get added to the bunch.</p>
<p><strong>geek</strong>, I&#8217;m in the same boat with a house falling apart.  I have appliances ready to go at any minute and I refuse to stress out over any of it anymore.</p>
<p><strong>that girl</strong>, I tried to pursue a malpractice suit but was told I have no grounds.</p>
<p>It was too complicated for the lawyers to handle basically.</p>
<p><strong>Chatty</strong>, That&#8217;s a very good and valid point.  They actually DEMAND all of their money NOW.</p>
<p><strong>Mary</strong>, I can&#8217;t WAIT until Disney World.  I talked about it nonstop at work yesterday.</p>
<p><strong>Cindy</strong>, I&#8217;m so glad you&#8217;re here!  Thanks for keeping us in your thoughts and adding me to your links.</p>
<p><strong><acronym title="My super secret fantasy boyfriend, has Power of Blog, Writer of http://www.secondhandkarl.com">Karl</acronym></strong>, We tried the lawsuit&#8230;it was a no-go.  </p>
<p>I cannot wait to go to Disney.  My suitcase is halfway packed.  I&#8217;m getting the girls swimsuits this weekend and packing their bags.</p>
<p>I CANNOT WAIT!!!!!!!</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Karl</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1150</link>
		<dc:creator>Karl</dc:creator>
		<pubDate>Fri, 18 Apr 2008 05:44:37 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1150</guid>
		<description>I second just about everything everyone has said so far. If that's not a righteous lawsuit, then I don't know what is.

Have a blast at Disney. The rest will all sort itself out.

&lt;em&gt;Karl's last blog post..&lt;a href='http://feeds.feedburner.com/~r/SecondhandTryptophan/~3/272619519/' rel="nofollow"&gt;Little Boy Blue, Come Blow Your Horn&lt;/a&gt;&lt;/em&gt;</description>
		<content:encoded><![CDATA[<p>I second just about everything everyone has said so far. If that&#8217;s not a righteous lawsuit, then I don&#8217;t know what is.</p>
<p>Have a blast at Disney. The rest will all sort itself out.</p>
<p><em><acronym title="My super secret fantasy boyfriend, has Power of Blog, Writer of http://www.secondhandkarl.com">Karl</acronym>&#8217;s last blog post..<a href='http://feeds.feedburner.com/~r/SecondhandTryptophan/~3/272619519/' rel="nofollow">Little Boy Blue, Come Blow Your Horn</a></em></p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Cindy</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1148</link>
		<dc:creator>Cindy</dc:creator>
		<pubDate>Fri, 18 Apr 2008 02:14:25 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1148</guid>
		<description>((((Hugs))))  I just came to your blog for the first time, from a link on another.  Please know I will be keeping you and your family in my thoughts.  I've added you to my links, so I can follow your progress as you kick cancer's ass.

&lt;em&gt;Cindy's last blog post..&lt;a href='http://highonlove.blogspot.com/2008/04/purge.html' rel="nofollow"&gt;The purge&lt;/a&gt;&lt;/em&gt;</description>
		<content:encoded><![CDATA[<p>((((Hugs))))  I just came to your blog for the first time, from a link on another.  Please know I will be keeping you and your family in my thoughts.  I&#8217;ve added you to my links, so I can follow your progress as you kick <acronym title="should be a curse word">cancer</acronym>&#8217;s ass.</p>
<p><em>Cindy&#8217;s last blog post..<a href='http://highonlove.blogspot.com/2008/04/purge.html' rel="nofollow">The purge</a></em></p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Mary</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1147</link>
		<dc:creator>Mary</dc:creator>
		<pubDate>Fri, 18 Apr 2008 00:56:24 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1147</guid>
		<description>Please enjoy Disneyworld. The bills can wait.</description>
		<content:encoded><![CDATA[<p>Please enjoy Disneyworld. The bills can wait.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: Chatty</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1146</link>
		<dc:creator>Chatty</dc:creator>
		<pubDate>Thu, 17 Apr 2008 22:29:22 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1146</guid>
		<description>Frankly, for what hospitals charge, I don't know how they expect people to NOT have a payment plan.  Vacation first.  Don't give it a worry for a week.</description>
		<content:encoded><![CDATA[<p>Frankly, for what hospitals charge, I don&#8217;t know how they expect people to NOT have a payment plan.  Vacation first.  Don&#8217;t give it a worry for a week.</p>
]]></content:encoded>
	</item>
	<item>
		<title>By: that girl</title>
		<link>http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1145</link>
		<dc:creator>that girl</dc:creator>
		<pubDate>Thu, 17 Apr 2008 20:59:03 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/2008/04/17/the-farse-of-ovarian-cancer/#comment-1145</guid>
		<description>sue the hospital that screwed you.  My husband is a med-malpractice attorney, and people sue for the LITTLEST things, but this is NOT a little thing, this is something immense and guess what?  THEY can pay your med bills, your DW trip, etc. etc.  It's not you being "litigious," it's you getting your rightful remedy to a terrible, terrible problem.  I never suggest lawsuits,but that was the first thing I thought of when I saw this post.

Checking on you every day and praying for your family.

&lt;em&gt;that girl's last blog post..&lt;a href='http://feeds.feedburner.com/~r/blogspot/vaYs/~3/271908823/and-another-thing.html' rel="nofollow"&gt;and another thing...&lt;/a&gt;&lt;/em&gt;</description>
		<content:encoded><![CDATA[<p>sue the hospital that screwed you.  My husband is a med-malpractice attorney, and people sue for the LITTLEST things, but this is NOT a little thing, this is something immense and guess what?  THEY can pay your med bills, your DW trip, etc. etc.  It&#8217;s not you being &#8220;litigious,&#8221; it&#8217;s you getting your rightful remedy to a terrible, terrible problem.  I never suggest lawsuits,but that was the first thing I thought of when I saw this post.</p>
<p>Checking on you every day and praying for your family.</p>
<p><em>that girl&#8217;s last blog post..<a href='http://feeds.feedburner.com/~r/blogspot/vaYs/~3/271908823/and-another-thing.html' rel="nofollow">and another thing&#8230;</a></em></p>
]]></content:encoded>
	</item>
</channel>
</rss>
