Comments on: Bureaucratic Bull http://clusterfook.com/2008/07/03/bureaucratic-bull/ It Is What It Is Mon, 01 Mar 2010 23:24:26 -0500 http://wordpress.org/?v=2.8.4 hourly 1 By: Katie http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2743 Katie Sun, 06 Jul 2008 21:33:08 +0000 http://clusterfook.com/?p=516#comment-2743 Just read your About page. Um, hopefully MDA isn't the world renowned cancer hospital from 2007. If so, just ignore my comment. That's what I get for de-lurking. Just read your About page. Um, hopefully MDA isn’t the world renowned cancer hospital from 2007. If so, just ignore my comment. That’s what I get for de-lurking.

]]> By: Katie http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2721 Katie Sat, 05 Jul 2008 18:00:22 +0000 http://clusterfook.com/?p=516#comment-2721 Have you tried self-referring yourself to M.D. Anderson Cancer Center? http://www.mdanderson.org/patients_public/new_patients/display.cfm?id=D602CED8-7483-11D4-AEBD00508BDCCE3A&method=displayFull Katies last blog post..<a href="http://feeds.feedburner.com/~r/ChaosInTheKitchen/~3/326105353/" rel="nofollow">Happy Fourth of July!</a> Have you tried self-referring yourself to M.D. Anderson Cancer Center?

http://www.mdanderson.org/patients_public/new_patients/display.cfm?id=D602CED8-7483-11D4-AEBD00508BDCCE3A&method=displayFull

Katies last blog post..Happy Fourth of July!

]]> By: PajamaChick http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2701 PajamaChick Fri, 04 Jul 2008 18:29:57 +0000 http://clusterfook.com/?p=516#comment-2701 Lisa - I don't have a "real" job right now - and I don't have Clusterfook's Syndrome. I'll fight for you. Just email me the numbers and info and I am your girl. Yes I am being serious. Pajamachick PajamaChicks last blog post..<a href="http://pajamachick.blogspot.com/2008/07/friends.html" rel="nofollow">Friends...</a> Lisa -
I don’t have a “real” job right now – and I don’t have Clusterfook’s Syndrome. I’ll fight for you. Just email me the numbers and info and I am your girl.
Yes I am being serious.
Pajamachick

PajamaChicks last blog post..Friends…

]]> By: Lisa http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2693 Lisa Fri, 04 Jul 2008 15:27:20 +0000 http://clusterfook.com/?p=516#comment-2693 <strong>Shelli</strong>, I've wondered the same thing myself. I don't know the answer to that. Dude can't do it because he works full time and he knows that I know the system better. And that's the thing...I know the system. I think I'm a better advocate than anybody I know. In fact I could probably make a career at it. I should have been a social worker or something. Shelli, I’ve wondered the same thing myself. I don’t know the answer to that. Dude can’t do it because he works full time and he knows that I know the system better. And that’s the thing…I know the system. I think I’m a better advocate than anybody I know. In fact I could probably make a career at it.

I should have been a social worker or something.

]]> By: Shelli http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2691 Shelli Fri, 04 Jul 2008 15:09:02 +0000 http://clusterfook.com/?p=516#comment-2691 Is there someone else who can fight this bureaucratic fight for you so that you can focus your fighting energy on your disease? This whole thing seems absolutely asinine. Shellis last blog post..<a href="http://shellis-sentiments.com/2008/07/04/while-laptopless/" rel="nofollow">While Laptopless…</a> Is there someone else who can fight this bureaucratic fight for you so that you can focus your fighting energy on your disease? This whole thing seems absolutely asinine.

Shellis last blog post..While Laptopless…

]]> By: Lisa http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2690 Lisa Fri, 04 Jul 2008 11:50:47 +0000 http://clusterfook.com/?p=516#comment-2690 <strong>MetalMom</strong>, This is one of the reasons I've thought of becoming a patient advocate because I'm not sure these kinds of people exist. The American Cancer Society exists but they just point you to different agencies and most of the time they can't help unless you are below the poverty line. <strong>Christine</strong>, Thanks! <strong>EDW</strong>, At least I got some of it straightened out. <strong>PajamaChick</strong>, That's a great answer! <strong>Kate</strong>, Damn, here I thought you were famous. I'm trying to save the media card for when I absolutely need it. Thanks for the prayers. <strong>Pam</strong>, Yes, having something rare certainly puts you into a completely different and odd category. I'm finding it frustrating. <strong>annie</strong>, Bingo my friend! You absolutely have it 100% correct! If it doesn't change SOON NO ONE is going to have health care except the wealthy. What the hell, soon no one is going to have anything but the wealthy. <strong>Catherine</strong>, I don't expect that they are going to name this anytime soon but PC's name suggestion is a good one. <strong>Yoshi</strong>, That's another problem. Those that prevent us from getting access to health care don't even care that they are doing it. They could care less if someone dies as a result of their apathy. <strong>Tug</strong>, I'm tired of fighting too. Thank goodness something went my way though. <strong>Christine</strong>, Still, it's too long but I'm glad there is an appointment. MetalMom, This is one of the reasons I’ve thought of becoming a patient advocate because I’m not sure these kinds of people exist.

The American Cancer Society exists but they just point you to different agencies and most of the time they can’t help unless you are below the poverty line.

Christine, Thanks!

EDW, At least I got some of it straightened out.

PajamaChick, That’s a great answer!

Kate, Damn, here I thought you were famous.

I’m trying to save the media card for when I absolutely need it.

Thanks for the prayers.

Pam, Yes, having something rare certainly puts you into a completely different and odd category. I’m finding it frustrating.

annie, Bingo my friend! You absolutely have it 100% correct! If it doesn’t change SOON NO ONE is going to have health care except the wealthy.

What the hell, soon no one is going to have anything but the wealthy.

Catherine, I don’t expect that they are going to name this anytime soon but PC’s name suggestion is a good one.

Yoshi, That’s another problem. Those that prevent us from getting access to health care don’t even care that they are doing it. They could care less if someone dies as a result of their apathy.

Tug, I’m tired of fighting too. Thank goodness something went my way though.

Christine, Still, it’s too long but I’m glad there is an appointment.

]]> By: Christine http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2687 Christine Thu, 03 Jul 2008 19:27:47 +0000 http://clusterfook.com/?p=516#comment-2687 YEAH!!!!!!!!!!!!!!! Update # 2 made me very happy for you!!!!!!!! Only 3 weeks away!!!!! Christines last blog post..<a href="http://momofdyslexic.wordpress.com/2008/07/03/i-am-going-off-topic-today-for-lisa-at-clusterfook/" rel="nofollow">I am going off topic, today, for Lisa at Clusterfook</a> YEAH!!!!!!!!!!!!!!! Update # 2 made me very happy for you!!!!!!!! Only 3 weeks away!!!!!

Christines last blog post..I am going off topic, today, for Lisa at Clusterfook

]]> By: Tug http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2686 Tug Thu, 03 Jul 2008 18:33:44 +0000 http://clusterfook.com/?p=516#comment-2686 OMG it SO sucks the big one that you have to continually fight for what should be a given - I am so sorry...but happy to read the update that you got an appointment at SK!! We're all here - just say the word if you want us to get the word out there in any way! Tugs last blog post..<a href="http://justtug.blogspot.com/2008/06/summer-meme.html" rel="nofollow">Summer Meme</a> OMG it SO sucks the big one that you have to continually fight for what should be a given – I am so sorry…but happy to read the update that you got an appointment at SK!!

We’re all here – just say the word if you want us to get the word out there in any way!

Tugs last blog post..Summer Meme

]]> By: yoshi http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2685 yoshi Thu, 03 Jul 2008 18:32:35 +0000 http://clusterfook.com/?p=516#comment-2685 That's crazy! I'd imagine that someone would at least try. I've worked in healthcare, and honestly, there are way too many people working in it that just don't care. it's seriously crazy. There are those people who were meant to be in nursing care or healthcare, but honestly there are those who just don't give a shit and that really pisses me off. Don't get me started on insurance. Oy! I'm so glad you got something set up! yoshis last blog post..<a href="http://feeds.feedburner.com/~r/haroyoshi/~3/324874294/" rel="nofollow">Wordless Wednesday</a> That’s crazy! I’d imagine that someone would at least try. I’ve worked in healthcare, and honestly, there are way too many people working in it that just don’t care. it’s seriously crazy. There are those people who were meant to be in nursing care or healthcare, but honestly there are those who just don’t give a shit and that really pisses me off.

Don’t get me started on insurance. Oy!

I’m so glad you got something set up!

yoshis last blog post..Wordless Wednesday

]]> By: Catherine http://clusterfook.com/2008/07/03/bureaucratic-bull/comment-page-1/#comment-2684 Catherine Thu, 03 Jul 2008 18:27:11 +0000 http://clusterfook.com/?p=516#comment-2684 Right on, PajamaChick! I heartily second the "Clusterfook Syndrome" idea. The lack of name for what you have is really bugging me and could amount to an even bigger problem than it looks like. Definitiveness - so important in diagnosing and treating stuff, it just can't be overstated. Without it, you're flying with a gaping blind spot. What unholy fucking mess, this red tape. I'm glad you've got some help and people in your corner. Catherines last blog post..<a href="http://cath68.blogspot.com/2008/07/h2m-is-evolving-bit.html" rel="nofollow">H2M is evolving a bit...</a> Right on, PajamaChick! I heartily second the “Clusterfook Syndrome” idea. The lack of name for what you have is really bugging me and could amount to an even bigger problem than it looks like. Definitiveness – so important in diagnosing and treating stuff, it just can’t be overstated. Without it, you’re flying with a gaping blind spot.

What unholy fucking mess, this red tape. I’m glad you’ve got some help and people in your corner.

Catherines last blog post..H2M is evolving a bit…

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