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	<title>Comments on: Group Hug</title>
	<atom:link href="http://clusterfook.com/2008/07/18/group-hug/feed/" rel="self" type="application/rss+xml" />
	<link>http://clusterfook.com/2008/07/18/group-hug/</link>
	<description>It Is What It Is</description>
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		<title>By: Lisa</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3364</link>
		<dc:creator>Lisa</dc:creator>
		<pubDate>Tue, 22 Jul 2008 16:12:19 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3364</guid>
		<description>&lt;strong&gt;Margalit&lt;/strong&gt;,LOL Dr. Pepper.  Thank you for all of your efforts in trying to help. I appreciate it so much.

&lt;strong&gt;Bonnie&lt;/strong&gt;, I am going to check out the links and see if we qualify.  It&#039;s on my life of things to do today.  Thank you very much for the references.  I totally appreciate it.

&lt;strong&gt;Jo&lt;/strong&gt;, You totally get what it is I&#039;m doing.  Thank you.  Thank you also for your prayers and hugs.

&lt;strong&gt;Shelli&lt;/strong&gt;, There&#039;s always one in every crowd, you know?  I&#039;m over it.

&lt;strong&gt;Lotta&lt;/strong&gt;, You will certainly hear from me if he does!  My family is just trying to meet our immediate financial needs like paying for the utiilities, mortgage, car payments, foods and medical bills.  I&#039;m starting to negotiate with everyone else.</description>
		<content:encoded><![CDATA[<p><strong>Margalit</strong>,LOL Dr. Pepper.  Thank you for all of your efforts in trying to help. I appreciate it so much.</p>
<p><strong>Bonnie</strong>, I am going to check out the links and see if we qualify.  It&#8217;s on my life of things to do today.  Thank you very much for the references.  I totally appreciate it.</p>
<p><strong>Jo</strong>, You totally get what it is I&#8217;m doing.  Thank you.  Thank you also for your prayers and hugs.</p>
<p><strong>Shelli</strong>, There&#8217;s always one in every crowd, you know?  I&#8217;m over it.</p>
<p><strong>Lotta</strong>, You will certainly hear from me if he does!  My family is just trying to meet our immediate financial needs like paying for the utiilities, mortgage, car payments, foods and medical bills.  I&#8217;m starting to negotiate with everyone else.</p>
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		<title>By: Lotta</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3355</link>
		<dc:creator>Lotta</dc:creator>
		<pubDate>Tue, 22 Jul 2008 06:44:57 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3355</guid>
		<description>PLEASE tell me/us if Jeremy drops the ball. We will all rally. Fuck - maybe we should still rally? Can we really trust this Jeremy guy?

What do you need the most for you and your family RIGHT NOW? This day, this week? Tell us so we can help out and not just wait for this guy to get his pr strategy meeting scheduled.

Lottas last blog post..&lt;a href=&quot;http://mom-o-matic.blogspot.com/2008/07/my-first-knock-knock-joke.html&quot; rel=&quot;nofollow&quot;&gt;My First Knock Knock Joke&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>PLEASE tell me/us if Jeremy drops the ball. We will all rally. Fuck &#8211; maybe we should still rally? Can we really trust this Jeremy guy?</p>
<p>What do you need the most for you and your family RIGHT NOW? This day, this week? Tell us so we can help out and not just wait for this guy to get his pr strategy meeting scheduled.</p>
<p>Lottas last blog post..<a href="http://mom-o-matic.blogspot.com/2008/07/my-first-knock-knock-joke.html" rel="nofollow">My First Knock Knock Joke</a></p>
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		<title>By: Shelli</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3342</link>
		<dc:creator>Shelli</dc:creator>
		<pubDate>Mon, 21 Jul 2008 18:09:10 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3342</guid>
		<description>There are people who think you are making this shit up?  WTF are their problems?  To them I say, &quot;go somewhere else and bother someone else, this woman has enough to deal with just fighting for her life!&quot;  Fuckers.

HUGS to you and your family.

Shellis last blog post..&lt;a href=&quot;http://shellis-sentiments.com/?p=1488&quot; rel=&quot;nofollow&quot;&gt;Hi!&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>There are people who think you are making this shit up?  WTF are their problems?  To them I say, &#8220;go somewhere else and bother someone else, this woman has enough to deal with just fighting for her life!&#8221;  Fuckers.</p>
<p>HUGS to you and your family.</p>
<p>Shellis last blog post..<a href="http://shellis-sentiments.com/?p=1488" rel="nofollow">Hi!</a></p>
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		<title>By: Jo</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3328</link>
		<dc:creator>Jo</dc:creator>
		<pubDate>Mon, 21 Jul 2008 05:11:41 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3328</guid>
		<description>I&#039;d like to say I can&#039;t believe people have the fucking audacity to doubt you but considering what I&#039;ve gone through myself over the years... I don&#039;t doubt it a bit.

Some people don&#039;t get that you&#039;re not sharing your story and your pain on this blog to get attention, money, or gifts. You do it because it keeps you just a little bit sane in the chaos that is your life now. 

By posting your worries and pain online you are able to keep a small part of it from settling on your husband and daughters&#039; shoulders. If you can cry here then that&#039;s one less time they have to hear you cry. If you can rage here that&#039;s one less time your husband has to be strong and listen... people just don&#039;t fucking get it and for that I&#039;m sorry.

I&#039;m also sorry that the cancer isn&#039;t going to let you go. I will admit I&#039;m feeling a little selfish here because I just found you and your blog and I don&#039;t want to see you go yet. I know you&#039;re not ready to go yet either. 

I&#039;ve never really put much faith in prayers but I will say one with all my heart for you before I try to sleep tonight. I will pray that your amazing will gives you the miracle you so desperately want.

Even though it&#039;s across the internet, my heart is with you. Hugz.

Jos last blog post..&lt;a href=&quot;http://feeds.feedburner.com/~r/LifeWithHeathens/~3/334532359/great-google-y-moogley.html&quot; rel=&quot;nofollow&quot;&gt;Great Google-y Moogley!&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>I&#8217;d like to say I can&#8217;t believe people have the fucking audacity to doubt you but considering what I&#8217;ve gone through myself over the years&#8230; I don&#8217;t doubt it a bit.</p>
<p>Some people don&#8217;t get that you&#8217;re not sharing your story and your pain on this blog to get attention, money, or gifts. You do it because it keeps you just a little bit sane in the chaos that is your life now. </p>
<p>By posting your worries and pain online you are able to keep a small part of it from settling on your husband and daughters&#8217; shoulders. If you can cry here then that&#8217;s one less time they have to hear you cry. If you can rage here that&#8217;s one less time your husband has to be strong and listen&#8230; people just don&#8217;t fucking get it and for that I&#8217;m sorry.</p>
<p>I&#8217;m also sorry that the cancer isn&#8217;t going to let you go. I will admit I&#8217;m feeling a little selfish here because I just found you and your blog and I don&#8217;t want to see you go yet. I know you&#8217;re not ready to go yet either. </p>
<p>I&#8217;ve never really put much faith in prayers but I will say one with all my heart for you before I try to sleep tonight. I will pray that your amazing will gives you the miracle you so desperately want.</p>
<p>Even though it&#8217;s across the internet, my heart is with you. Hugz.</p>
<p>Jos last blog post..<a href="http://feeds.feedburner.com/~r/LifeWithHeathens/~3/334532359/great-google-y-moogley.html" rel="nofollow">Great Google-y Moogley!</a></p>
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		<title>By: Bonnie Sayers (autismfamily)</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3321</link>
		<dc:creator>Bonnie Sayers (autismfamily)</dc:creator>
		<pubDate>Mon, 21 Jul 2008 00:58:45 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3321</guid>
		<description>I am glad to see some updates from you.  I learned of this blog from twitter and put a request the other day to follow you.  I am autismfamily all over the internet.  It is so sad to read that people do not believe you have cancer, but after dealing with autism for the past ten years I can believe that such people exist.

I am the one that mentioned wish upon a hero to join and get a profile up. When is your kids birthdays?  YOU can post there and get cards and goodies for them and start thinking about thanksgiving and xmas.  I adopted several families there and at cafemom last year.  I can help you with that site, if you need any assistance.

Also modest needs to get a specific bill paid like mortgage, rent, car payment, utility bill. I posted some other sites in my other comment on post before this one.  A google search for wishes or charity will find other sites.  I think one was real-wishes and digital charity and another one called greeyorneedy.

Bonnie Sayers (autismfamily)s last blog post..&lt;a href=&quot;http://autismfamiily.blogspot.com/2008/07/autism-reviewer-book-swap.html&quot; rel=&quot;nofollow&quot;&gt;Autism Reviewer Book Swap&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>I am glad to see some updates from you.  I learned of this blog from twitter and put a request the other day to follow you.  I am autismfamily all over the internet.  It is so sad to read that people do not believe you have cancer, but after dealing with autism for the past ten years I can believe that such people exist.</p>
<p>I am the one that mentioned wish upon a hero to join and get a profile up. When is your kids birthdays?  YOU can post there and get cards and goodies for them and start thinking about thanksgiving and xmas.  I adopted several families there and at cafemom last year.  I can help you with that site, if you need any assistance.</p>
<p>Also modest needs to get a specific bill paid like mortgage, rent, car payment, utility bill. I posted some other sites in my other comment on post before this one.  A google search for wishes or charity will find other sites.  I think one was real-wishes and digital charity and another one called greeyorneedy.</p>
<p>Bonnie Sayers (autismfamily)s last blog post..<a href="http://autismfamiily.blogspot.com/2008/07/autism-reviewer-book-swap.html" rel="nofollow">Autism Reviewer Book Swap</a></p>
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		<title>By: Nina</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3308</link>
		<dc:creator>Nina</dc:creator>
		<pubDate>Sun, 20 Jul 2008 18:43:24 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3308</guid>
		<description>Anyone who suggested you were a faker should be kicked to death.  Oh, I am sorry.  That sounded very angry.  What I meant was they better never get within reach of my boots.  

((hugs))

Ninas last blog post..&lt;a href=&quot;http://readerwritesmith.blogspot.com/2008/07/fnp.html&quot; rel=&quot;nofollow&quot;&gt;FNP&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>Anyone who suggested you were a faker should be kicked to death.  Oh, I am sorry.  That sounded very angry.  What I meant was they better never get within reach of my boots.  </p>
<p>((hugs))</p>
<p>Ninas last blog post..<a href="http://readerwritesmith.blogspot.com/2008/07/fnp.html" rel="nofollow">FNP</a></p>
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		<title>By: margalit</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3305</link>
		<dc:creator>margalit</dc:creator>
		<pubDate>Sun, 20 Jul 2008 18:20:59 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3305</guid>
		<description>I am praying that Mr Pepper (doncha want to call him Dr Pepper?) comes through, but I&#039;m not holding my breath. If he does, I&#039;ll eat my words gratefully. In the meantime I&#039;ve got a few more ideas up my sleeve, including contacting Joyce Zakim at Dana Farber. She lives nearby and I thought I might just &#039;stop by&#039; and accost her to get your info right out there at the tip top of the cancer research organizations. I&#039;m trying. I really am.

Also, my friend&#039;s husband with stage 4 Colo/rectal cancer also didn&#039;t respond to normal protocols but he has responded well with alternative protocols via Mass General. I can get you in touch with his doctors easily. Husband has passed the 6 year mark, even with cancer spreading to brain, lungs and liver. He still works every day and walks to synagogue 2 miles each way every weekend. So something is working.

I&#039;m trying as hard as I can. I want to make a difference to your family and to keep you healthy.

As for the lying bit, nobody knows better than I do what it means to be accused of lying about my health. I have a congenital heart defect and am in full congestive heart failure. I&#039;m fully disabled and will never live a normal life. I&#039;m on a transplant list (still low down because I&#039;m not near death&#039;s door). But I&#039;m constantly accused of being a fat housebound slob who is living on welfare. Lost 70+ lbs, not housebound, not on welfare. But it makes no difference. People believe what they want, and you cannot, as Dave2 says, change their minds. I know about me. My friends and family know the truth about me. If some asshole internet jackoff thinks I&#039;m lying, well good on them. I bet it makes them feel oh so much better than me. Until they get sick. Heh.

margalits last blog post..&lt;a href=&quot;http://outtamymindwithworry.blogspot.com/2008/07/blognot-our-day-at-beach.html&quot; rel=&quot;nofollow&quot;&gt;Blognot: Our day at the beach&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>I am praying that Mr Pepper (doncha want to call him Dr Pepper?) comes through, but I&#8217;m not holding my breath. If he does, I&#8217;ll eat my words gratefully. In the meantime I&#8217;ve got a few more ideas up my sleeve, including contacting Joyce Zakim at Dana Farber. She lives nearby and I thought I might just &#8217;stop by&#8217; and accost her to get your info right out there at the tip top of the cancer research organizations. I&#8217;m trying. I really am.</p>
<p>Also, my friend&#8217;s husband with stage 4 Colo/rectal cancer also didn&#8217;t respond to normal protocols but he has responded well with alternative protocols via Mass General. I can get you in touch with his doctors easily. Husband has passed the 6 year mark, even with cancer spreading to brain, lungs and liver. He still works every day and walks to synagogue 2 miles each way every weekend. So something is working.</p>
<p>I&#8217;m trying as hard as I can. I want to make a difference to your family and to keep you healthy.</p>
<p>As for the lying bit, nobody knows better than I do what it means to be accused of lying about my health. I have a congenital heart defect and am in full congestive heart failure. I&#8217;m fully disabled and will never live a normal life. I&#8217;m on a transplant list (still low down because I&#8217;m not near death&#8217;s door). But I&#8217;m constantly accused of being a fat housebound slob who is living on welfare. Lost 70+ lbs, not housebound, not on welfare. But it makes no difference. People believe what they want, and you cannot, as Dave2 says, change their minds. I know about me. My friends and family know the truth about me. If some asshole internet jackoff thinks I&#8217;m lying, well good on them. I bet it makes them feel oh so much better than me. Until they get sick. Heh.</p>
<p>margalits last blog post..<a href="http://outtamymindwithworry.blogspot.com/2008/07/blognot-our-day-at-beach.html" rel="nofollow">Blognot: Our day at the beach</a></p>
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		<title>By: Lisa</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3304</link>
		<dc:creator>Lisa</dc:creator>
		<pubDate>Sun, 20 Jul 2008 17:48:25 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3304</guid>
		<description>&lt;strong&gt;AnnieH&lt;/strong&gt;, I haven&#039;t looked into any clinical trials yet because of my diagnosis.  I&#039;m seeing an oncologist at Sloane-Kettering this coming Thursday who specializes in tumors of unknown origin because no one knows what I have or where it came from.  All we know is that my cancer did not respond to the protocol for colon/gastric cancer.  Things just got worse.</description>
		<content:encoded><![CDATA[<p><strong>AnnieH</strong>, I haven&#8217;t looked into any clinical trials yet because of my diagnosis.  I&#8217;m seeing an oncologist at Sloane-Kettering this coming Thursday who specializes in tumors of unknown origin because no one knows what I have or where it came from.  All we know is that my cancer did not respond to the protocol for colon/gastric cancer.  Things just got worse.</p>
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		<title>By: Lisa</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3303</link>
		<dc:creator>Lisa</dc:creator>
		<pubDate>Sun, 20 Jul 2008 17:43:44 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3303</guid>
		<description>&lt;strong&gt;DesignHER Momma&lt;/strong&gt;, Thank you for your support.  I really appreciate it and welcome to Clusterfook.

&lt;strong&gt;Candace&lt;/strong&gt;, The support I am receiving from the blogging community is keeping me glued together.  The donations I&#039;m receiving are incredible.  I&#039;m just overwhelmed and extremely grateful.

&lt;strong&gt;PajamaChick&lt;/strong&gt;, I sent an email to you.  Did you get it?

&lt;strong&gt;HeatherK&lt;/strong&gt;, I&#039;m definitely sneaking away with you next year.  I think that anyone who is dealing with a terminal disease shouldn&#039;t have to worry about financial stress but it&#039;s just the reality of the situation.  It just seems incredibly wrong...not just for me...for anyone.  The stress is horrible.  Thanks for the hugs.

&lt;strong&gt;Christine&lt;/strong&gt;, Thank you for the link.  I read some of her story last night and want to go back today and read more.  

&lt;strong&gt;Valeta&lt;/strong&gt;, Thank you for your vote of confidence.  I know I&#039;d be a piece of shit for making this up.  My family, who reads this blog, can not only vouch for me but I think they would lynch mob me if they thought I was making this up.

My friends would just kill me.

&lt;strong&gt;Anissa&lt;/strong&gt;, I cannot believe someone put you through that.  

There are lots of resources out there if you are at poverty level.  With four people on one income we aren&#039;t there but not that far.  Still, I&#039;m applying for everything I can.

I don&#039;t want to die.  I&#039;m not ready to die and I&#039;m not going quietly so please, keep me in your prayers.

&lt;strong&gt;Avitable&lt;/strong&gt;, Yes. There are a few out of hundreds that doubt I&#039;m telling the truth.  I could write a book on the details of what I&#039;ve been through and they would probably still doubt the truth.  

Screw them.

&lt;strong&gt;Kandy&lt;/strong&gt;, I know I visited your blog from here because Christine posted a link.  I started reading your story late last night and want to get back and read more.

I can&#039;t believe people would be so cruel.  I&#039;m sorry you have had to endure so much.

I also hope you are right, that miracles do happen because I think that&#039;s what this is going to take.

&lt;strong&gt;AnnieH&lt;/strong&gt;, I have had a long meeting with the social worker at my hospital and she gave me forms to fill out for cancercare.org.  I&#039;ll be starting the process of filing for SSDI as soon as the court hearing with Unemployment is over.  I can only handle one thing at a time. No one has mentioned Medicaid to me.  I think with my husband&#039;s income I&#039;m illegible.  I&#039;ll have to look into it so thank you for mentioning it.</description>
		<content:encoded><![CDATA[<p><strong>DesignHER Momma</strong>, Thank you for your support.  I really appreciate it and welcome to Clusterfook.</p>
<p><strong>Candace</strong>, The support I am receiving from the blogging community is keeping me glued together.  The donations I&#8217;m receiving are incredible.  I&#8217;m just overwhelmed and extremely grateful.</p>
<p><strong>PajamaChick</strong>, I sent an email to you.  Did you get it?</p>
<p><strong>HeatherK</strong>, I&#8217;m definitely sneaking away with you next year.  I think that anyone who is dealing with a terminal disease shouldn&#8217;t have to worry about financial stress but it&#8217;s just the reality of the situation.  It just seems incredibly wrong&#8230;not just for me&#8230;for anyone.  The stress is horrible.  Thanks for the hugs.</p>
<p><strong>Christine</strong>, Thank you for the link.  I read some of her story last night and want to go back today and read more.  </p>
<p><strong>Valeta</strong>, Thank you for your vote of confidence.  I know I&#8217;d be a piece of shit for making this up.  My family, who reads this blog, can not only vouch for me but I think they would lynch mob me if they thought I was making this up.</p>
<p>My friends would just kill me.</p>
<p><strong>Anissa</strong>, I cannot believe someone put you through that.  </p>
<p>There are lots of resources out there if you are at poverty level.  With four people on one income we aren&#8217;t there but not that far.  Still, I&#8217;m applying for everything I can.</p>
<p>I don&#8217;t want to die.  I&#8217;m not ready to die and I&#8217;m not going quietly so please, keep me in your prayers.</p>
<p><strong>Avitable</strong>, Yes. There are a few out of hundreds that doubt I&#8217;m telling the truth.  I could write a book on the details of what I&#8217;ve been through and they would probably still doubt the truth.  </p>
<p>Screw them.</p>
<p><strong>Kandy</strong>, I know I visited your blog from here because Christine posted a link.  I started reading your story late last night and want to get back and read more.</p>
<p>I can&#8217;t believe people would be so cruel.  I&#8217;m sorry you have had to endure so much.</p>
<p>I also hope you are right, that miracles do happen because I think that&#8217;s what this is going to take.</p>
<p><strong>AnnieH</strong>, I have had a long meeting with the social worker at my hospital and she gave me forms to fill out for cancercare.org.  I&#8217;ll be starting the process of filing for SSDI as soon as the court hearing with Unemployment is over.  I can only handle one thing at a time. No one has mentioned Medicaid to me.  I think with my husband&#8217;s income I&#8217;m illegible.  I&#8217;ll have to look into it so thank you for mentioning it.</p>
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		<title>By: AnnieH</title>
		<link>http://clusterfook.com/2008/07/18/group-hug/comment-page-2/#comment-3302</link>
		<dc:creator>AnnieH</dc:creator>
		<pubDate>Sun, 20 Jul 2008 17:32:49 +0000</pubDate>
		<guid isPermaLink="false">http://clusterfook.com/?p=567#comment-3302</guid>
		<description>PS. Have you or you doc looked into clinical trials through the American Cancer Association?? I&#039;m guessing yes, but here&#039;s their toll free #

American Cancer Society Clinical Trials Matching Service
toll free: 1-800-303-5691

AnnieHs last blog post..&lt;a href=&quot;http://tidingsofmagpies.blogspot.com/2008/07/ohio-by-david-young.html&quot; rel=&quot;nofollow&quot;&gt;OHIO by David Young&lt;/a&gt;</description>
		<content:encoded><![CDATA[<p>PS. Have you or you doc looked into clinical trials through the American Cancer Association?? I&#8217;m guessing yes, but here&#8217;s their toll free #</p>
<p>American Cancer Society Clinical Trials Matching Service<br />
toll free: 1-800-303-5691</p>
<p>AnnieHs last blog post..<a href="http://tidingsofmagpies.blogspot.com/2008/07/ohio-by-david-young.html" rel="nofollow">OHIO by David Young</a></p>
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