Understanding

by Lisa on December 18, 2008

in Cancer Sucks

First, let me thank those of you who have been sending gifts for my birthday. I want to thank you publicly however what I have to say right now is really important. I promise to recognize all of you in a later post.

I saw my doctor yesterday and my cancer has progressed so far that he doesn’t feel optimistic about chemo, any chemo, working. I requested that we keep trying as long as I can tolerate the side effects.

I’ve also requested that we seek another opinion at John’s Hopkins.

In the meantime I am in a great deal of pain. The last thing I need to deal with is stress yet there are people in my life that don’t get that.

The only people I am concerned about are Dude and our two daughters. Spending time with them is all I want to do.

I will not tolerate anyone to cause me stress during my final months of life. Anyone that would to that to someone who is dying needs to take a hard look at themselves in my opinion.

Unfortunately this new chemo calls for me to go for two weeks in a row so I went yesterday and I go back on the 23rd. That means I’ll be sick for Christmas and in bed. I’m in bed everyday now so it will be like every other day.

I think there are people who think I make this stuff up. Get over yourself if that’s what you think. And leave me to live in peace.

To the rest of you who support me I thank you so very much.

{ 1 trackback }

Weekend Wrapup — Clusterfook
01.05.09 at 11:22 am

{ 78 comments… read them below or add one }

1 Robin 12.18.08 at 6:48 pm

Lisa,
You are in my thoughts and prayers, daily.

Ignore those bastards!!! FUCK CANCER!!!

Robin

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2 Dawn 12.18.08 at 7:00 pm

What the…?

No, forget it. I don’t want to hear about this stress because I don’t want you to waste precious energy talking or thinking about anyone who’s causing you stress.

((( hugs )))

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3 usedtobeme 12.18.08 at 7:01 pm

WTF? Someone is doubting you? They’re an assholechickenfucker. Do what you need to do and have the best holiday possible with your family! xoxo Me

usedtobemes last blog post..It was bound to happen

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4 Becky 12.18.08 at 7:04 pm

Damn. DAMN. Lisa, I’m so sorry to hear this. I’m thinking of you all right now and sending you a sloppy, wet, Internet hug.

Beckys last blog post..Songs To Break-Up To

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5 Karen Sugarpants 12.18.08 at 7:08 pm

again? gah.

i love you…fuck the haters and fuck cancer.

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6 Kate 12.18.08 at 7:34 pm

Sending you, your children and husband peace. I’m praying for you daily. Focus on the people in your life who mean the most; that makes sense. Forget the rest. Loving thoughts.

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7 Lisa in So Cal 12.18.08 at 7:42 pm

You don’t know me, but I’m sending you love and prayers from Southern California.

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8 Jen 12.18.08 at 7:56 pm

It’s one thing to doubt someone (not that I doubt what you’re saying at all) it’s another thing to tell a person with cancer “I think you’re making this up”. People who do things like that are broken, they’re missing a part of their soul. You take care of you and yours. Anyone who questions you can take a flying leap.

Jens last blog post..How would you describe me?

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9 misi 12.18.08 at 8:02 pm

Wow, yea like it’s SO much fun to discuss such a shitty situation… People are ignorant bastards if they think you would do something like that. Just from reading your blog before this got so serious it’s obvious that you would MUCH rather be talking about fun,witty things.
Whoever said that is an ignorant,dumb,miserable fuck-head!!!

misis last blog post..

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10 MaryLeigh 12.18.08 at 8:06 pm

Prayers with you, Lisa. I also think you should think about hospice care for pain management…because a lot of people do improve so much that they leave the program. You deserve to have no pain and have time with your family. Ever get that massage?? :)

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11 Bruce 12.18.08 at 8:10 pm

You’re thought of every day, here in Ct. I also say a prayer for you each day, asking the “Big Guy” to do what he can, to make your life a bit better…..No matter what it may be ….big or small.

Heather K’s Dad

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12 derfina 12.18.08 at 8:19 pm

I LOVE your fierceness. Focus on what is important to you and forget about the rest of the world. We will all be praying for you. *smooches*

derfinas last blog post..The Hokey Pokey

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13 Cindy 12.18.08 at 8:47 pm

Praying for a miracle. Thinking of you in Ohio.

Cindys last blog post..The Return

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14 perpstu 12.18.08 at 8:57 pm

How or why anyone would accuse a person of making up the kind of pain you are experiencing is ridiculous! Get a second, third and fourth opinion if you need to. Don’t stop fighting!

XOXOXO

perpstus last blog post..TT#29 – Visions of Christmases Past

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15 HeatherK 12.18.08 at 8:58 pm

Man, my Dad beats me to the comments? lmbo. ;-)

I think of your girls every time I see some silly hannah montana thing in the store. I think of you often. Give a yell if you need any help with the hopkins trip in any way shape or form.

I’m still trying to get a free night out to go eat some ribs on your behalf. Maybe I’ll do that for your birthday. :-)

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16 Kizz 12.18.08 at 9:04 pm

Glad to hear you’ve got a plan and have your ducks in a row. You know you’re doing everything just right for your family. Fuck whoever thinks they know better. My thoughts are with you.

Kizzs last blog post..Call It A Fulcrum

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17 Maureen 12.18.08 at 9:13 pm

Don’t waste one precious moment of your life on the negative, Lisa. There are far too many of us who care for you and support you. Wishing you peace and love every day of your life,
Maureen :)

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18 Ashley Hast 12.18.08 at 9:20 pm

My positive and best thoughts prayers are with you and your family. Sending love, hugs, and all that other smushy stuff through the internet. :)

Ashley Hasts last blog post..I give up.

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19 Walking With Scissors 12.18.08 at 9:26 pm

I think it’s disgusting that anyone would give you a hard time over this. Some people have no shame, no class and, let’s face it, no brain. Fuck ‘em.

I hope you and your family have a very Merry Christmas. Eat cookies, cake and turkey in bed. Enjoy every second of it!

Walking With Scissorss last blog post..Hmm… Decisions, decisions…

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20 Tug 12.18.08 at 10:02 pm

I’m glad to hear you’re asking for a 2nd opinion – FUCK cancer.

I hope you have peace…I hope you feel all of our love and prayers and good wishes…I hope you feel our wishes for strength for you shining through all of the pain you have to deal with.

My prayers for you are continual, my hugs to you are virtual, my hope is eternal.

Tugs last blog post..Wishing you love…

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21 Tasses 12.18.08 at 10:04 pm

Haven’t posted here much, but want to let you know that there are those of us out there who are thinking of you even if we don’t tell you. Daily.

Tassess last blog post..Santa Responds

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22 Finn 12.18.08 at 10:50 pm

Honey… I think about you every day, and I pray for you every day.

Ignore the bullshit and focus on what and who is important.

Much love.

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23 Black Belt Mama 12.18.08 at 11:35 pm

Oh Lisa. I’m so sorry to hear this news. I hope you get some pain relief soon and find someone who offers you some new hope. You’re in my prayers. If there is anything I can do for you, please just let me know.

Black Belt Mamas last blog post..To Those Girls at the Gym (You Know Who You Are)

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24 EDW 12.18.08 at 11:41 pm

I’m always in your corner, and sending love, prayers, and peace to you and yours.

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25 TxConnie 12.19.08 at 12:07 am

There is no reason you should be hurting this bad. Please make you doc help you with this. I saw a comment yesterday about hospice and the help. Please check it out.

My heart goes out to you.

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26 Lisa O 12.19.08 at 12:39 am

Lisa – tonight I am praying that you feel God’s love wrapped around you as well as all of us that love and adore you.
Rest, love and know we are praying for a miracle.
Hugs

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27 Rona Michelson 12.19.08 at 1:44 am

Lisa, I am wishing you warm, meaningful moments with your family so that you and they will cherish this time when every moment is precious. I hope that you are able to get some relief of your pain so that you are able to fully be with them. Rather than look at the few nasty people, try to focus on the loving community that you have built for yourself. People all over the world are praying for you.

Rona Michelson, Modi’in Israel

Rona Michelsons last blog post..Things I’ve Done

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28 Mary 12.19.08 at 3:01 am

Karma is a bitch. It is hard to imagine there are people who question you. Not worth your time. Spend the time with your girls and Dude and on kicking cancer’s ass.

All good things,
Mary

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29 Lynda 12.19.08 at 5:12 am

That is a sucky Christmas present, Lisa. I hope that you and your family have a wonderful holiday, and I am going to send my best thoughts and wishes to you and your family.

I’ve seen the ugly side of cancer and what it can do to a young person. Anyone who is giving you grief just doesn’t deserve your time.

Lyndas last blog post..Perhaps I’m Being a Jerk….

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30 Mattie 12.19.08 at 6:10 am

People can be so inconsiderate and thoughtless and yes, sometimes just plain stupid assholes.

Don’t let these ignorant people affect your spirit.

I am thinking of you every day. Only good thoughts and hopeful wishes.

Matties last blog post..Untitled Entry #1

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31 sodapop 12.19.08 at 7:10 am

I can’t believe people would actually doubt it. It escapes me how they can be so cold and heartless.

I think of you often and I pray for you daily.

sodapops last blog post..Packing, packing and more packing

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32 Miss Britt 12.19.08 at 7:26 am

I hope you, the girls, and Dude are able to enjoy Christmas in some way together this year.

Love you.

Miss Britts last blog post..The Father Son Dynamic – Is that why he pushes?

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33 Tami 12.19.08 at 8:21 am

I’m so sorry to hear that. I think about you everyday and pray for you, dude and the girls. I really don’t know what’s wrong with people………..but we both know they don’t matter.

Tamis last blog post..Leelou Launch Party

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34 Valerie 12.19.08 at 9:19 am

I can not for the life of me believe the balls of some people. FUCK CANCER, get that second opinion and I hope you can get some pain relief soon. I am praying for you.

Valeries last blog post..Watch out

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35 radioactivetori 12.19.08 at 9:42 am

I am thinking about you, and hoping your Christmas is beautiful and as free from pain as it can be. If there is anything I can do to help, please let me know!

radioactivetoris last blog post..Tackle Basketball

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36 Krystle 12.19.08 at 10:00 am

Wow Lisa… Wow… so help them God, that those people NEVER EVER have to go through what you have gone through. They should be ashamed of themself.

My thoughts and prayers are with you Lisa… Really…

Merry Merry Christmas.

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37 Avitable 12.19.08 at 10:18 am

Maybe you could celebrate Christmas early before you start the next round? And that way if you’re too tired on Christmas it won’t feel like you’re missing out?

Avitables last blog post..C is for cookie. Well, and cock.

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38 Diane 12.19.08 at 11:50 am

My thoughts and prayers are with you and your family.

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39 PaintingChef 12.19.08 at 12:15 pm

Lisa. The strength and grace you have shown through an ordeal that would have a lesser person throwing up their hands, retreating and just saying fuck it all is something that leaves me speechless on a daily basis. And it is something that will make an impact on the lives of your girls and Dude. So on Christmas, be in bed but surround yourself with your people. Your girls. Dude. And it will be a Christmas that will be in their hearts forever. Love to you.

PaintingChefs last blog post..Dear Bob Barker-My dog hates you.

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40 Christine 12.19.08 at 12:18 pm

*sticking tongue out at the naysayers*

And, a big HUG to you Lisa…I am so thankful that you shared your journey with total strangers. I wish I could do more for you. Baked goods? An hour painfree? Anything? (I do love to bake, maybe I can send some goodies up)

Christines last blog post..Two months into the school year! Aka, sorry I have been absent!

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41 Shannon 12.19.08 at 1:33 pm

I wish I could send more than just prayers and wishes for you. If I could send our guardian angel over to do some work for you, I would.

Just be with DUDE and your girls – nothing else matters.

Shannons last blog post..Selective ADHD on the last day of work before the holiday closure

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42 Captain Steve 12.19.08 at 1:54 pm

I don’t comment regularly, because I’m a lazy bastard, but I read all your posts and all your people above me are right – fuck the bastards. You concentrate on your family. I’m sorry for your recent news and good luck at John Hopkins.

Captain Steves last blog post..Buffy the Vampire Slayer

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43 Angie 12.19.08 at 3:01 pm

Lisa, just hang in there, be with your girls, dont even listen to them. We all love you and send our best wishes.
You’re in my thoughts and prayers as well.

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44 Hilly 12.19.08 at 5:36 pm

I’m disgusted that people think you are making this up. Disgusted times ten.

Happy Birthday to you and I hope you and your family have a really happy holiday season filled with love.

Hillys last blog post..Apparently Diamonds Are The Reason For The Season…

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45 Kay 12.19.08 at 6:07 pm

I don’t even want to wish karma on vile people like those that are giving you stress but do they even realize? Dumbfounds me.
Fuck them, fuck it all! You are giving your attention to postive things right now and that is it! You hear? ((HUGS))

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46 Robin 12.19.08 at 7:14 pm

I had to re-read your entry to really take in that people think you’re making up this experience…some people really need a beating more than others.

My heart and prayers are with you – FUCK CANCER!

Robins last blog post..A little insane…

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47 Nancy 12.19.08 at 8:38 pm

Now more than ever, you need to focus on YOU, your husband and your daughters. Everyone else can just get over themselves. If there is anything I can do for you, please ask. I’m a great present wrapper!! I also know every aisle of the grocery store like the back of my hand!

Get your rest & I’ll see you soon!

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48 Maggie 12.19.08 at 8:44 pm

I hate to hear your news, but I think your head is screwed on just right. The most important people in your life: hub, two girls, are the only ones that matter right now. You four are the only ones that are important and your needs and wants supercede anything anyone else is saying, doing with you. Hold steady, breathe deep, find that place of peace and work from there. Remember, everyone is just ‘playing their role’ – right or wrong, they don’t know how to behave, just ignore those kinds of people and keep your focus where it is, on your heart and the gifts you have given the world, your babies!
Maggie

Maggies last blog post..A Merry Christmas

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49 GirlintheCrosswalk 12.20.08 at 2:38 am

I’m glad to hear that you are seeking another opinion. And even happier that it is at Johns Hopkins. There are good folks there. ;) I would know…

As for Christmas in bed… get some candy cane pants, move the tree into your bedroom, and alternate between opening presents and sleeping.

Love you woman! You are a fighter. Every time I think of you, you have combat boots on in my head… I know, I’m twisted. But, really. I really look up to you a great deal. Not just because you fight canSer and somehow keep on truckin’ and that makes you amazing. But because you are so many things. You’re intelligent and more hard working than most any other person. You’re funny. You’re an amazingly open person. And most importantly I admire you because you are a good mom to your little girls. They are going to grow up into the most amazing young women and it’s all because of you (and Dude too, but… it’s all because of you). No matter if you leave them soon or in 59823405862039847 years. I can tell from your posts, your concerns–you are an AMAZING mother and no matter what, your little girls are going to do something wonderful and be wonderful, wonderful people because of it. I don’t think this of many people because believe me, I’ve known a plethora of really, really terrible mothers…

You are fantastic.

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50 Sarah 12.20.08 at 4:11 am

That’s awful. I hope you and your family have a wonderful Christmas. Even if it’s spent in your bedroom.

Hugs.

Sarahs last blog post..Sarah’s not here right now

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51 hello haha narf 12.20.08 at 10:23 am

i’m thankful that you will see what johns hopkins has to say.

and yay for not tolerating stress. you have much better things to concentrate on.

much love to you, lisa.

hello haha narfs last blog post..All About My Christmas Crazy

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52 2HT's Mom 12.20.08 at 12:40 pm

I wish the news had been better- Enjoy your family and the Holiday and Happy Birthday- Know that lots of prayers and good wish are being sent – Love, Maria

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53 annie 12.20.08 at 1:40 pm

People who think you make this up are sick or stupid. They live in a world where bad things don’t happen, I guess.

I don’t want you to be in pain, Lisa. Are they giving you drugs to help with that? I know every case is different as is every persons tolerance to certain drugs.I remember when my friend had cancer, they didn’t want to give her the strong stuff, because they didn’t want her to become addicted. I gave the Dr. a piece of my mind and they gave it to her and she had much relief. I hope you have someone to advocate for you and help you with the pain management.

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54 Janer 12.20.08 at 4:05 pm

Glad you’re still fighting and getting another opinion. Many, many healthy thoughts and prayers continue to come your way.

And as merry a Christmas and as happy a birthday as you can stand, Lisa.

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55 Britta 12.20.08 at 9:52 pm

Lisa, thanks for sharing this with all of us. You truly help me to be a better nurse. Merry Christmas and lots of prayers your way.

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56 The Minx 12.20.08 at 10:08 pm

You don’t know me either, I think that I found out about you from the blog from the lady who lives on the river. I am sending lots of love, from both myself & Zoe(the cat). Fuck those who don’t believe you. It’s so sad that folks even question this, but they do, because some people (for their own misguided reasons) lied. I am always going to believe.
Please, sweetie, consider hospice care.
Lots of Love from The Minx & Zoe, too!

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57 Suzanna Catherine 12.20.08 at 11:21 pm

Sending healing thoughts and lots of prayers your way. Along with everyone else I’m hoping for a Christmas miracle for you.

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58 Kerri 12.21.08 at 1:24 pm

Lisa, I keep checking up on you and am so sorry to hear your news. Sometimes we get so caught up in our own pity parties and we forget there are so many others like you who stay strong and just keep beating on her drum, making her own beautiful music. I won’t tell you to stay strong because you apparently don’t need to hear it. I will tell you that I continue to pray for you and your family as I have been every day. Sending you a virtual hug because I can’t do it in person. I think a lot of us would if we could.

Kerris last blog post..Crystallizing Beauty

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59 elismsue 12.21.08 at 6:18 pm

Lisa,

hang in there, take care of yourself, enjoy this season with the girls and Dude and know that I send prayers and happy thoughts. may God bless you, Kiddo!

Sue

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60 DutchBitch 12.22.08 at 3:12 am

Being past 59 comments now I am probably not gonna say anything that anyone hasn’t said before already but I think you are completely right: concentrate on the things that are important to you right now. It’s what matters. And it doesn’t matter what anyone else thinks about that and people who think you make this shit up, well, they’re just nuts.

Thinking of you!!! ((((HUGZ))))

DutchBitchs last blog post..It’s all about numbers

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61 Bobbird3131 12.22.08 at 4:31 pm

You and your family are in my prayers. I HATE cancer. Go away cancer, Stop hurting her.

Bobbird3131s last blog post..It’s Almost Christmas

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62 stinkypaw 12.22.08 at 6:53 pm

Enjoy every moments with your loved ones! Sorry for the news and you’ll be in my thoughts.

stinkypaws last blog post..What a weekend.

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63 Anita Doberman 12.22.08 at 9:15 pm

I hope you can have some peace this Christmas…
how pathetic that someone feels the need to write something hurtful and awful… I am glad you are not waisting your time on those people ..
Merry Christmas – sending you positive thoughts

:)

Anita Dobermans last blog post..Monty the poop eater

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64 she 12.22.08 at 11:08 pm

support and hugs 190%!!!!

shes last blog post..Good News

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65 that girl 12.28.08 at 5:50 pm

Haven’t visited you in awhile and am so, so saddened to read this. Sending love from an anonymous person in your life who supports you and is neverendingly amazed at how much you do for the 3 people who matter most.

that girls last blog post..Christmas Redux

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66 Karl 12.28.08 at 10:23 pm

Sorry to hear you’re so sick. Hope you’re feeling better soon.

Karls last blog post..Ho Ho Ho

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67 Barbara 01.04.09 at 11:31 pm

So when you get enough gifts and money, will you pretend to die?

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68 Lisa 01.05.09 at 9:33 am

Barbara: Yes, that’s exactly how I have it planned. This is a great big cancer scam that I’ve been playing since 2004. I’m good, aren’t I?

You are pathetic.

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69 Avitable 01.05.09 at 9:35 am

Lisa, what’s Barbara’s email address and IP address?

Avitables last blog post..I support my local economy!

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70 Lisa 01.05.09 at 9:42 am

Avitable:

I sent you an email

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71 Tug 01.05.09 at 9:58 am

Wow. Just…wow. Not much will leave me speechless, but damn.

((HUGS)) Lisa. Hugs & prayers.

Tugs last blog post..Bah.

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72 Lisa 01.05.09 at 10:24 am

Tug: She’s probably a jealous attention whore. If she’s like to trade places with me, then I’d be more than happy to.

She left me speechless for a second. Now I’m just pissed at how stupid she is.

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73 Louise 01.05.09 at 11:39 am

Did she possibly mean “Okay, so do the naysayers think you’ll pretend to die”? I kind of doubt it because of the way it was worded, so… wow, what an assmitten.

Louises last blog post..The post where I’m too excited about Coolio.

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74 Amkii 01.05.09 at 12:10 pm

I’m pissed at how stupid she is, too. And she’s too much of a coward to leave her e-mail or URL! Wow… just wow. Some people really amaze me. What an arrogant, self-centered, cold, nasty, un-feeling bitch.

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75 Krystle 01.05.09 at 1:08 pm

Has this Barbara taken a look at your flickr pictures and everything you have? Perhaps you just shaved your head for the fun of it? Puh-lease.

Worthless Bitch.

Hugs to you Lisa, I’m glad you’re feeling better – after the transfusion and all.

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76 Dana 01.05.09 at 3:19 pm

What the hell is wrong with people? That Barbara twat should get just a small taste of what you’ve been dealing with so we can all sit back and judge her and make assumptions about her.

Oh, and she should also get a raving case of crabs.

xoxoxoxo,
Dana =)

Danas last blog post..Home Sweet Home

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77 Catherine 01.06.09 at 6:29 pm

*jaw dropped*

Catherines last blog post..thwack

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78 Jennifer 01.15.09 at 11:56 pm

Lisa,
Faith can move mountians. You are wrapped in the love of your family and amazing friends.Thank you for allowing me into your life.You Lisa are power and grace personified.
Much Love,
Jennifer

Hey Barbara…suck it.

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